Introducing the NDSSGs Management Committee
The NDSSG Management Committee comprises of parents of children with Down Syndrome, with varying backgrounds, skills and experience. This page is to allow the members currently serving on the Management Committee to introduce themselves.
I’m Charlotte, proud mum of two. I help chair the management committee meetings and love being part of the wider NDSSG team. I felt passionate about keeping the NDSSG going a number of years back, at a time when it reached a point that commitment was difficult and support was needed. Thankfully, bridging that gap helped keep it alive and it’s thriving again now, with a great team! I love speaking to other parents and sharing our experiences and journeys with each other. The Down Syndrome community of support is key and has helped me along the way so I want to ensure I can also do that for others.
My name is Marie. I have two children, Gabe and James, and have been attending NDSSG events on and off since Gabe was 6 months old. It is now nice to be able to be part of the committee to be involved in the organisation of future events. I enjoy running and in 2019 I ran the London Marathon to raise money for the Down Syndrome Association.
Hi I’m Vic and I’m the secretary of the NDSSG management committee. Basically I’m an admin geek and love paperwork and organising meetings! When Flo was only a few months old I knew I wanted to be involved with the NDSSG. I am passionate about connecting people and providing opportunities for our children, parents and carers to form supportive relationships and hopefully friendships. I also help to run the NDSSG preschool group which gives parents, carers and our lovely children a chance to play and connect with each other every week.
I’m Andy, and have been involved in running NDSSG for 15 years on and off – since our son Matt was 3, who is now 18 – how time flies! I am the treasurer for the group so deal with all the finances – from taking subs at the football group to preparing annual accounts and keeping the management committee up to date with our funds. I work full time at NTU and with the free time I do have (not much!) I like watching films and most sports and going out with Matt on our electric tandem!
I’m Helen and mum to 3 almost adult children. My middle child Matt, is 18 and the reason we set up NDSSG almost 15 years ago!!! I’m a fulltime carer to Matt and use my spare time to run and organise NDSSG activities and sewin keepsakes for people. I love Nottingham Forest, spending time with family/friends/my two dogs, drinking wine and being out in the sunshine!
Tara Bradshaw Girling
Hi I’m Tara, mum to Oliver, 7 who has DS and baby Rosie. I have helped run the NDSSG since 2017 and mainly help with fundraising. I have always been really passionate about creating a DS community for Nottinghamshire, one that allows us to provide fun and essential opportunities for our children as well as a great support network for parents. In my spare time – if I get any- I enjoy Gin and spending time with friends.
Digital Media Manager
My husband ,Rich, and I have a Beautiful 2 year old son whose name is Harley. Although we are no longer living in Nottinghamshire we have an active role in the group and can be found enjoying many of the wonderful and exciting NDSSGs events.
I’m mum to George who is 6 months! I’m currently on maternity leave, but work 4 days a week as a secondary school maths teacher! I decided to become a part of the committee for NDSSG as their support was valued so much after George’s diagnosis, and I want to be able to support others too. I would love to say what I like to do in my spare time, but with a 6 month old and a 2 year old, I don’t know what spare time is!
Hi I’m Ali Jordan, mum to Alfie (4) and Freddie (5) step mum to Tilly (20). We had prenatal diagnosis of Down Syndrome and AVSD with Alfie. Alfie has had lots of health challenges but is overcoming them and is starting mainstream school next year. We have found the support from other families invaluable and the Nottinghamshire Downs Syndrome Support Group provides really good ways to support families and creates opportunities to come together.